That must have been terrifying! Has he got his eyesight back fully now? One of the drugs I take to control my lupus has damaged my retinas - but not to the point of blindness, thank god.
I call mine overeager and incompetent. It likes to attack everything but what it is supposed to attack. The running tally of autoimmune diseases is currently at 4. It is bad enough that I am eating medication that is used also in higher doses for chemotherapy. In other words, if I trusted my immune system I would have died long ago as it also doesn’t really function against infections either.
Snap! Just the 3 for me, but lupus is vicious enough for two. I switched from oral methotrexate to injections about 10 years ago as the dosage was getting too high. I’ve been on prednisone continuously for 15+ years and boy does it show 😒 we most certainly did not win the genetic lottery!
One of mine is also lupus. Thankfully it has mostly spared internal organs but it really likes skin and veins in addition to joints in my case, veins being the biggest problem. I also have EDS so the genetic lottery really didn’t like me. I joke with my friends that someone should tell my body that diseases are not Pokemons.
EDS here too! Type 3, but it’s pretty severe. PoTS, sjorgens, fibro, hypothyroidism, NAID etc etc. My lupus loves attacking my kidneys, heart and brain as well as joints, skin and hair, but it’s kinder on the outside than in. I don’t want to look ill, but it is a bit cruel to look pretty healthy on the outside but seriously ill on the inside. I wish you more good days than bad!
My immune system is literally trying to kill me. I don’t trust it with shit.
My dad’s sent him blind for 6 months.
This started 2 weeks before the Millennium.
That must have been terrifying! Has he got his eyesight back fully now? One of the drugs I take to control my lupus has damaged my retinas - but not to the point of blindness, thank god.
Fortunately yes, he was able to return to work in the July of 2000, retired about 5 ago and still fine drive safely.
Being able to drive is such a huge deal. I really glad he’s doing ok now.
Thanks
I call mine overeager and incompetent. It likes to attack everything but what it is supposed to attack. The running tally of autoimmune diseases is currently at 4. It is bad enough that I am eating medication that is used also in higher doses for chemotherapy. In other words, if I trusted my immune system I would have died long ago as it also doesn’t really function against infections either.
Snap! Just the 3 for me, but lupus is vicious enough for two. I switched from oral methotrexate to injections about 10 years ago as the dosage was getting too high. I’ve been on prednisone continuously for 15+ years and boy does it show 😒 we most certainly did not win the genetic lottery!
One of mine is also lupus. Thankfully it has mostly spared internal organs but it really likes skin and veins in addition to joints in my case, veins being the biggest problem. I also have EDS so the genetic lottery really didn’t like me. I joke with my friends that someone should tell my body that diseases are not Pokemons.
EDS here too! Type 3, but it’s pretty severe. PoTS, sjorgens, fibro, hypothyroidism, NAID etc etc. My lupus loves attacking my kidneys, heart and brain as well as joints, skin and hair, but it’s kinder on the outside than in. I don’t want to look ill, but it is a bit cruel to look pretty healthy on the outside but seriously ill on the inside. I wish you more good days than bad!